We want to hear from you

Your voice is important to us! We want to make sure that you’re represented as we create resources and presentations so that they are meaningful to you and the diffuse midline glioma (DMG) community.

Please respond to all questions before submitting.

I am a ______________(Required)

A. Person living with DMG

B. Caregiver of someone with DMG

C. Patient advocate

D. Other

What DMG and/or treatment topics would you like to see at future presentations or conferences?(Required)

Select all that apply.

A. General DMG information (what DMG is, underlying genetic causes, etc)

B. How to diagnose DMG and what tests to ask for

C. How to advocate for yourself

D. Resources and support for patients and their caregivers

E. Available treatments

F. Ongoing research into treatment

G. Other

If you were to help us create events or materials that reflect the wants and needs of the DMG community, how would you prefer to do so?(Required)

Select all that apply.

A. Responding to surveys about my experiences and DMG journey

B. Attending educational sessions

C. Participating in panel discussions with other members of the DMG community

D. Offering feedback on materials and resources

E. Becoming a patient advocate for genetic testing and targeted treatment

F. Other

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